A Long Needed THANK YOU!!

As we finish up the year, as a family we look back and in many aspects wish this year never happened. Some of our hardest times as a family have come in the past year and some of our biggest fears were faced! It has been a challenging year in many ways. However as we…

Not Today. Today is Different.

I was warned by several people that we would have days… Days like today. Amber was admitted to the hospital this afternoon to start her third round of chemo. Her first round was rough. Her second round was actually not that bad. This round… This round is different. It’s real. You see, Amber has made…

Amber’s 1st Round of Chemo

Amber just barely finished her first round of chemo which consisted of being admitted to the hospital for two days to have the harsh dose of chemo followed by two weeks of a lighter chemo that does not make her as sick. The one that makes her really sick is the one she is admitted…

Treatments

The last couple of weeks have been pretty uneventful. Have I mentioned how hard the waiting has been? We had a follow-up appointment with Amber’s Pediatrician, Dr. Holmes. He was reading through the reports from her surgery and was surprised to find out that Amber never had a blood transfusion. He said that her Hemoglobin levels were…

Amber’s Surgery and Recovery

This entire week has been a challenge and has introduced me to more emotions than I thought was possible. I have learned so much about myself and my family this week. Let me share! Day #1 (Monday) – Labs I had to take Amber to Primary Children’s Hospital for her pre-surgery labs. I was so…

What is Pleuropulmonary Blastoma and DICER1 Syndrom

We have had a lot of people asking about Amber and her condition. We have done a good job at letting everyone know what we are going through. However I wanted to take a minute to explain exactly what Amber is diagnosed with and what this rare form of cancer is. Pleuropulmonary Blastoma (or PPB)…